A boy who was born without a stomach has achieved another historic feat after surviving for five years by taking food in his stomach for the first time since he was born.
She said:“Children who have the illness are nicknamed the ‘real Thumbalinas’ because they’re just so tiny and thin. I’ve spoken to a lot of other mums and dads that didn’t know at first that their child has the illness, and the children have actually been taken into care because they look malnourished. I’ve seen kids the same age as Tristan wearing baby clothes, they’re that small, they’re as small as little dolls. I knew something was wrong with him when he was born, mainly because he was so small, but also because every time I tried to breast feed him he’d throw it back up in my face. He was literally like an Exorcist child – it would come out at such a speed it would be quite shocking.”
Celia’s pregnancy was normal up until 20 weeks when her midwife found the placenta was blocking her womb, causing difficulties with childbirth.“When he came out so small I thought the placenta had something to do with it, so I was mortified. I just kept thinking the whole thing was my fault, and to say I felt devestated was a huge understatement.”
Baffled doctors eventually diagnosed the tot with the growth disorder, which affects one in every 50,000 births and characterised by dwarfism and triangular-shaped faces. Celia, also mum to Bethan, four, began the tiring battle to teach her baby how to eat, prompting years of tears and sleepless nights.
Celia said:“Because he wasn’t eating, I’d be keeping him alive by getting up every hour in the night to feed him. It was just so physically exhausting and I couldn’t even feed him my breast milk because he was allergic to that. It was like there was literally everything was wrong with him, his jaw hadn’t grown properly in the womb, and when the nurses told me all this I went bananas, all I wanted was to help him.”
Desperate, Celia enlisted the help of a specialist feeding programme and got training on how to encourage Tristan’s eating, which changed his life.Celia said:“It was a slow process as his stomach is still growing and developing with every mouthful. He takes around 45 minutes to eat one meal but compared to how bad he was before it’s amazing and he’s come such a long way. Feeding him before this was a nightmare.”
culled:celebfresh.com
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